The time I thought I had to ease into the transition from walker to wheelchair has run out. I’m not ashamed to use a wheelchair or any assistive tools, but it seems my family is either really uncomfortable or just can’t seem to wrap their mind around me requiring mobility assistance.
Despite my power chair, back up manual chair and my rollator, the living room looks like a medical supply store showroom. They’re all shiny and new and although I was advised to make use of them over a year ago, it hasn’t happened.
I really need your advice and thoughts on a key to taking better care of myself. My dad, for the most part is aware of my difficulties, has been the one to take me to doctors all over Manhattan and Long Island, yet when he sees me having to crawl, doesn’t consider that the time has come. I have to be very careful in how I present things to him or he can spin it that I’m somehow criticizing him or his favorite, that he’s a slave and “everyone is so ungrateful.” It can even get uglier than that.
So how do I tell him I’m going to need him to push my wheelchair (the house inaccessible and the power chair can’t be moved until I move). and have him both take it seriously but not turn it into some battle that doesn’t even make sense to me?
I don’t want to rely on others, but I am no less than a prisoner in my bedroom which feels more like a cell lately. How do I introduce this and make it stick? Sometimes he and others have really stepped up and gone above and beyond only for things to fizzle and I end up back where I started.
What am I missing? Am I handling things wrong? Do I need to approach it differently? Is my word just not enough to get through? Please share any advice you have, particularly if you’ve had your own difficulties with loved ones accepting the changes you’ve made to adapt and thrive!